The bald women: "If hair was essential it would grow on the inside"

Name: The bald women: "If hair was essential it would grow on the inside"
Uploaded: 2017-01-18T09:31:14Z
Duration: PT172.377S
Channel: Cronaca

pubblicato il 18 gennaio 2017 alle ore 10:31

Alopecia is not a bad word, it's a disease which was already largely known by the ancient Egyptians. Those who suffer from it lose their hair, whether a little or a lot. At times they don't lose much; other times, they lose it all and along with it, even all their body hair (including eyelashes and eyebrows) eventually fall.
Alopecia becomes a serious problem as soon as the physical matter turns into a psychological matter. It's a human reaction, obviously. However, it can be limited by realizing that we are never alone (and we are never ugly, in any case).

I have decided to work on this project thanks to Martina’s request, one of the characters of this video. She encouraged me to talk about this project. And I have also decided to address it to Irene, a six-year-old girl who's currently losing her hair.
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The Alopecia Areata Support Association ASAA is a non-profit organization which was born in 2008 thanks to a self-help and mutual-aid group spontaneously formed from a mailing list called “Volpine” (Italian term which means “little foxes”). From this virtual meeting, an intense association activity took place; it aims at providing psychological support to people who live with Alopecia Areata and raising public awareness, in order to achieve both social and institutional recognition of the pathology. Our main support web is based on promoting self-help and mutual-aid, both on social networks and recurring meetings. The latter ones are centered on both formal and informal socialization. We seek to create intimate and protected spaces, where the discomfort linked to Alopecia Areata can be expressed, defined and shared. We also strive to spread information on how to realistically handle daily problems linked to Alopecia, being certain that each one is a resource carrier thanks to his/her Alopecia experiences.
A particular attention is dedicated to Families in which Alopecia has become a life companion for boys and girls since their tender age. Together we try to find strategies to help “peacefully grow up with Alopecia”, with the result of perceiving the disease as an occasion of growth for the whole family. Every year we organize one or two meetings where parents and children are actively involved through educational and recreational activities. During these meetings, we also keep into account the different phases of the evolutionary process concerning children and kids affected by the disease and by the specific difficulties that can arise. We also have several agreements on the territory in order to allow all the members to enjoy professional services at a concessional rate (Psychology and psychotherapy offices, wig and prosthesis companies and sellers, make-up and dermopigmentation studios), with the goal of improving the quality of life and wellness of those who live with Alopecia Areata.

A telephone service is on call every day from Monday to Friday (from 2:00 p.m. to 4:00 p.m.) at +39 380 373 0033

How to contact the members:
E-mail: presidenza@sosalopeciaareata.org
www.sosalopeciaareata.org - where you can become member, make a donation or choose to give your 5X1000 from your tax return.
FB PAGE: ASAA Alopecia Areata
FB closed groups: Alopecia Italia ASAA ONLUS - Alopecia Italia Famiglie ASAA ONLUS

In order to tell about Alopecia Areata better, we have answered 10 simple questions on our website: http://www.sosalopeciaareata.org/alopecia-areata